awakening_dreams: short skirt, long legs (Default)
god forbid i ever get healthy

the head of the michigan lyme association and i are arranging a roadtrip to see dr. sherr, if she'll see the people who want to see her, it adds up to 5 or 6. heh. profiling!

Cara: the other part i will say which is why i respect her so much

Ticks are a part of the way of life for people who live on the rural Eastern Shore of Maryland. And he was a biologist; ticks are considered by biologists and birders there to be common occupational nuisances. He picked them off himself without a thought. One dog belonging to the family had a known total of 300 ticks on him when my sister undertook the task of counting them.

I remember the first time after 1991 when Dad died that I thought about the all-overish-ness syndrome again. I had been sure that the new mattress that my husband and I had purchased was defective. It was so firm, I thought, that it made my hips ache. But when the aching spread to my hands and to my ankles, it became more difficult to blame the mattress.
Soon after that, as I hurried to get my purse to pay a delivery man, I suddenly collapsed on the steps leading upstairs. The doctor who I consulted then for weakness and joint pains tried to reassure me that my lab work generally was OK and I looked just fine for my age. I thought, "I have heard this somewhere before and I know this drill!" But I never knew another name for it until an additional 6 years had come and gone. That was when my new family doctor recognized the symptoms and applied a scientific label to my version of Dad's excellent clinical description, "the all­overish-ness". Of course, that syndrome was in him more than likely the same syndrome that later developed in me.

My doctor identified it as chronic Lyme, co-infective with other tick-borne diseases, verified many months into treatment with positive borrelia and babesia DNA testing.

Dr. John Drulle wrote in 1991: "Polymyalgia rheumatica (PMR) is a common disease of elderly people characterized by pain and stiffness in the muscles of the upper arms and legs, fevers, malaise and weight loss... In classic form, the cause of the condition is unknown... I have personally seen three cases of Lyme-induced PMR...".

Polymyalgia rheumatica sounds a lot like "chronic Lyme all-overish­ness" to me. However, I may rename it for myself. It could just as well be called chronic "overall-ish-ness" - tyrant that it is.
and yet she still treats, she uses those eexperiences, mental and physical, for inspiration, since she does not only treat lyme.

Chey: hmmm
it's interesting to me to see a clinician admit to having ever suffered anything ever

Cara: me too.
i have to ask about the PMR
because even thinking about right now, it's super rare but it sure sounds familiar, doesn't it.

Chey: will having the diagnosis help you? I mean, if it's true it doesn't change that you have it, and if it's not it doesn't change that something's up...

Cara: it would explain right now. and all the other times where i have acute injuries that flare for years after.
it will help me because i was told the only other option is lyme got into my brain

Chey: aha, okay

Cara: so this is more of a relief

Now playing: Gorillaz - Feel Good Inc (Stanton Warriors Remix)


awakening_dreams: short skirt, long legs (Default)

June 2010

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