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I never expected I'd have to be thinking so hard on this again )

Just. Rrr. I know I need to start thinking about this again so I can find out what treatment I need for apparently having Colorado Tick Fever too. I need to get a test done that makes even me wince at how much pain it will involve, so I'm not even going to approach it. All I'll say is that it will be on the same level of pain as a bone marrow biopsy and leave it at that.

Apparently Ben Stiller is being tested for lyme? His son already has it and it's now looking like he does, too. He's left with 'lyme disease versus invasive procedure'. The article cites him preferring the lyme, but it also says lyme is easily treatable, so I'm going to call bullshit that he actually said that.

Bull. shit.
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On Tuesday April 20, 2009 the Michigan Lyme Disease Assocation will be sponsoring the showing of the Movie "Under our Skin" at the:

Besse Center Theater
Bay Community College
2001 N. Lincoln Road
Escanaba, MI.

Admission is Free.
Movie starts at 7pm.

For more information please call 1-888-784-5963
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Birds are carrying lyme disease, now? As in, they have it and also carry the ticks and drop them various places? (bombs away) Can I get a confirm or deny on this? (Kat, have you heard anything to this effect?)

If this is true, I will be more - I will move up north, okay, birds don't fly in Mackinac City or the island. The most they fly is 60 feet up, because all the tourists feed them, so they are not scared of humans. Oh, but you say, so many trees? Screw the trees! But spiders carry it too. I have a shoe! What if worms get it, or it can mist out of the sidewalk? Then I will go to hell after shooting everyone around me!

God. How will we avoid ticks now?
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A lot of people have asked me to produce something explaining the lyme situation and government in plain terms. I recently had to write an essay on it for english, so I'm replicating it here.

If this doesn't clear things up, let me know.


... )
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From Charlotte < >
subject [MichiganLymeSupport] Flight Grounded By Ticks. Yes, Ticks

Hey everyone,

Found this news article today on Channel 4 news website.

Little Blood-Sucking Parasites Prompt Major Delay

POSTED: 12:17 pm EDT July 9, 2008
UPDATED: 12:35 pm EDT July 9, 2008

DES MOINES, Iowa -- Some wayward ticks delayed a United Airlines flight from Denver to Des Moines.

Flight 1178 was delayed for nearly six hours on Tuesday after a passenger informed a flight attendant that she found a tick in economy class during a flight from Washington, D.C., to Denver.

The airline decided it couldn't fly the plane until it was cleaned of ticks, so passengers had to wait while another plane was flown from Colorado Springs to Denver. The flight was further delayed because of thunderstorms in the Denver area.
Click Here

United spokeswoman Robin Urbanski said between one and three ticks were discovered. Urbanski said the airline hasn't figured out how the ticks got on the plane or what types of ticks were found.

"I don't know if we'll be able to find that out," Urbanski said. "When possible, we do try to look into those types of things, and hopefully try to look for its origin."

The replacement plane shuttled the 107 passengers to Des Moines.

The plane with ticks had begun its day in Chicago. It was cleaned of ticks, checked and put back into service.

No ticks were found on passengers.

Ticks can pass along a number of illnesses to humans, including Lyme disease.

Support Michigan Lyme Disease Association

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Write your local newspaper and encourage them to carry this press release! Do it for me and Kat, and everyone else who suffers from chronic lyme and gets bit in the ass by this shit every single day.

Connecticut Attorney General's Office

Press Release

Attorney General's Investigation Reveals Flawed Lyme Disease Guideline Process, IDSA Agrees To Reassess Guidelines, Install Independent Arbiter

May 1, 2008
Attorney General Richard Blumenthal today announced that his antitrust investigation has uncovered serious flaws in the Infectious Diseases Society of America's (IDSA) process for writing its 2006 Lyme disease guidelines and the IDSA has agreed to reassess them with the assistance of an outside arbiter.

The IDSA guidelines have sweeping and significant impacts on Lyme disease medical care. They are commonly applied by insurance companies in restricting coverage for long-term antibiotic treatment or other medical care and also strongly influence physician treatment decisions.

Insurance companies have denied coverage for long-term antibiotic treatment relying on these guidelines as justification. The guidelines are also widely cited for conclusions that chronic Lyme disease is nonexistent.

"This agreement vindicates my investigation -- finding undisclosed financial interests and forcing a reassessment of IDSA guidelines," Blumenthal said. "My office uncovered undisclosed financial interests held by several of the most powerful IDSA panelists. The IDSA's guideline panel improperly ignored or minimized consideration of alternative medical opinion and evidence regarding chronic Lyme disease, potentially raising serious questions about whether the recommendations reflected all relevant science.

"The IDSA's Lyme guideline process lacked important procedural safeguards requiring complete reevaluation of the 2006 Lyme disease guidelines -- in effect a comprehensive reassessment through a new panel. The new panel will accept and analyze all evidence, including divergent opinion. An independent neutral ombudsman -- expert in medical ethics and conflicts of interest, selected by both the IDSA and my office -- will assess the new panel for conflicts of interests and ensure its integrity."

Blumenthal's findings include the following:

* The IDSA failed to conduct a conflicts of interest review for any of the panelists prior to their appointment to the 2006 Lyme disease guideline panel;

* Subsequent disclosures demonstrate that several of the 2006 Lyme disease panelists had conflicts of interest;

* The IDSA failed to follow its own procedures for appointing the 2006 panel chairman and members, enabling the chairman, who held a bias regarding the existence of chronic Lyme, to handpick a likeminded panel without scrutiny by or formal approval of the IDSA's oversight committee;

* The IDSA's 2000 and 2006 Lyme disease panels refused to accept or meaningfully consider information regarding the existence of chronic Lyme disease, once removing a panelist from the 2000 panel who dissented from the group's position on chronic Lyme disease to achieve "consensus";

* The IDSA blocked appointment of scientists and physicians with divergent views on chronic Lyme who sought to serve on the 2006 guidelines panel by informing them that the panel was fully staffed, even though it was later expanded;

* The IDSA portrayed another medical association's Lyme disease guidelines as corroborating its own when it knew that the two panels shared several authors, including the chairmen of both groups, and were working on guidelines at the same time. In allowing its panelists to serve on both groups at the same time, IDSA violated its own conflicts of interest policy.

( more.... )
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Message 310 on *General Mailing List (#1787):
Date: Mon May 21 15:21:30 2007 EDT
From: Lily (#22298)
To: *General Mailing List (#1787)
Subject: Tick High Season

As you all know already, I'm infected with lyme and possible coinfections. As a result, this is a very sensitive topic for me. I was bitten last year in Maine, from being there for two hours. I was bitten -in the city-, on the highway, from one lone clump of ten pieces of high grass. You may think that these are low odds, but they are actually more common than you would think.

This year, this sort of thing is going to be especially common. It's a tick high summer, and there are more around than ever. It doesn't matter if your state is known for ticks or not. For example, Michigan is said to have no ticks - and yet we have many cases of lyme disease! For example, the city of Warren in Michigan has had no cases of tick bites for years. During one week this summer, four children and a dog from one neighborhood were all bitten. One child has already developed lyme disease.
Please, be careful. Watch out for ticks. Inspect yourself if you suspect you came into an area that ticks would be present, both while you're outside and when you arrive at home. Wear long sleeves and long pants if you're going into one of these areas. Tuck your pants into your shoes, to try to prevent ticks from crawling inside of clothing - but make sure to inspect after, anyway. Lighter colour clothing is recommended, as this makes them easier to spot; also wear smoother material. It's harder for them to grab onto. Knits and the like are strongly discouraged. Insect repellents that contain 'DEET' are somewhat effective if used, but do not use them over wide areas of the body. Apply them to the arms, legs, and around the neck. Make sure that your product uses 25% DEET - while there are products sold on the market with 50%, you run a high risk of being poisoned if you use this. Be aware that this repellent evaporates quickly, and you will have to reapply it frequently.
Tick repellents that contain 'permethrin' are meant to be sprayed onto clothing, -not- you.

One way to get rid of ticks is after you've been in an area you suspect to be infested, put your clothing in a dryer. Ticks hate being dried out.
If you find a tick, regardless of whether you develop a rash, go to your local doctor. If you are feeling any symptoms of a tick infection, go to the emergency room -immediately-. A common misconception is that in all cases of lyme disease, you will develop a bulls eye rash. In fact, this only develops in under half of the cases. A rash signifies that the spirochete bacteria has infected the skin - which does not always happen!

A lot of times, the first part of the infection of a tick-borne disease is described to feel like a case of the flu. With some diseases, such as Q-Fever or Babesiosis, it can develop especially high fevers, up to 104 degrees. However, a low grade fever is much more common with infections such as lyme disease.
Be aware that the tests are flawed when it comes to tick borne diseases. If you are feeling ill and you have been bitten by a tick, pursue this, even if you are told that you test negative. The only one that can truly tell you that you are not infected is a lyme literate doctor. If you're having issues, talk to me, and I will help you.

If you're sick and you were bitten by a tick recently, a doctor should be putting you on antibiotics, regardless of what the tests say. If they do not put you on preventative antibiotics, demand them. This is a clinical -requirement- and necessity to prevent any tick borne diseases from developing. The sooner they are caught, the better.

I realize this is a long mail, but I want to keep everyone informed. If you have any questions or concerned, please feel free to talk to me. I have nearly a year's experience in this, and I'm willing to help in any way I can.


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